The ME/CFS Information Page
Links to Useful Sources

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Index:

• Definitions of M.E., CFS, and ME/CFS
• Good sources of Information on M.E., CFS, and ME/CFS
• Specific Research Hypotheses as to the Cause of ME/CFS
• What is it like to have ME/CFS?
• Patient Groups in the United States
• Disability Insurance Information
• Co-Cure ME/CFS & Fibromyalgia "Good Doctor" List (provided by patients
• Commercial Testing Labs and Health Supplement Sources

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Definitions of M.E., CFS, and ME/CFS

• Consensus ME-CFS clinical definition and research guidelines - original version
• Overview of the new Consensus ME-CFS clinical definition and research protocol
• Byron Hyde's Definition of ME/CFS
• Melvin Ramsay's Definition of M.E., 1986-88
• Research Definitions of M.E.
• "What is ME? What is CFS?"
• "Are M.E. and CFS the Same?" by Byron Hyde
• The 1994 Fukuda et al Research Definition, used by U.S. CDC
• The 1994 Fukuda et al Research Definition - original article
• The 1988 Holmes definition of CFS

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Good Sources of Information on M.E., CFS, and ME/CFS

• Co-Cure Website and Discussion list
• MERGE - UK charity funding research into Myalgic Encephalomyelitis
• Invest in M.E.
• MEsite-Denmark
• The ME Association Home Page
• The 25 percent M.E. Group
• The CFS-Phoenix Research Information Website
• The CFIDS Report Website

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Specific Research Hypotheses as to the Cause of ME/CFS

• Rnase-L Enzyme Dysfunction
• HHV-6 Foundation
• Mycoplasma - Garth Nicholson website

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Other Conditions with similarities to ME/CFS

• Post-Polio Syndrome
• Lyme Disease
• Fibromyalgia
• Multiple Sclerosis
• Lupus
• Connective Tissue Disorders (including Ehlers-Danlos)

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What is it like to have ME/CFS?

• Spectrum of symptoms in CFIDS patients in clinical studies
• The 25 percent M.E. Group
• Dr. David Bell: Questionnaire for documenting severity of symptoms in CFIDS
• Listening to CFIDS
• Mary Schweitzer's essays on CFIDS-ME
• Phyllis Griffiths, "Valley of Shadows: Life with CFIDS"
• For Parents of Sick and Worn-Out Children

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Patient Groups in the United States

• Wisconsin CFS Association
• California CFS & FMS Support Groups Directory
• The Connecticut CFIDS and FM Association Webpage
• Massachusetts CFIDS Association
• New Jersey Chronic Fatigue Syndrome Association
• Vermont CFIDS Association
• PANDORA [CFS/CFIDS/ME located in Miami area
• Northern Virginia CFS/ME and FMS Support Group
• CFS & FM Support Group of Dallas-Fort Worth
• CFS-Phoenix

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Testing Laboratories and Supplement Sources for specific problems of M.E./CFS Patients

• Redlabs USA - testing for HHV-6A and the Rnase-L Factor
• Immunosciences - many useful tests for patients with ME/CFS
• ProHealth - a patient cooperative supplying CFS and Fibromyalgia supplemental nutrition

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