MPWC's Fall 1998 NewsletterClick here to read the latest information on the October 1998 research conference of the American Association for Chronic Fatigue Syndrome (AACFS); the investigation into CDC's misuse of funds allocated for CFS; research briefs, announcements and general news. You can subscribe to MPWC's newsletters by sending an email to Lori Clovis.
MPWC co-founder Meghan Shannon goes to Parliament!! The British organization BRAME (Blue Ribons for Awareness of Myalgic Encephalomyelitis) organized meetings with members of Parliament on May 14, and Meghan was invited to come.
Click here to read
the full story.
Gail Dahlen, RN, MPWC President, speaks at the CFSCC. Gail presented testimony on behalf of MPWC and PWC's everywhere at the April, 1998, meetings of the Chronic Fatigue Syndrome Coordainting Committee of the U.S. federal Department of Health and Human Services, with Surgeon-General David Satcher in attendance.
Go here to read Gail's testimony.
MPWC was formed in 1993 by Gail Dahlen and Meghan Shannon to give MPWC's an opportunity to coordinate their efforts, support each other, and make a difference for all PWC's.
MPWC keeps an updated and completely confidential registry of medical persons with CFIDS. This group includes nurses, MD's, medical technologists, physical therapists, respiratory therapists, pharmacists, psychologists, medical office personnel, and any other person who was in any way associated with a medical profession. Just as with other PWC's, some MPWC's are still able to work, some are able to work only part-time, and some are totally disabled. We are the only group who has kept ongoing information on medical persons with CFIDS. MPWC has also conducted surveys on the name since 1993.
MPWC participates in a variety of advocacy and awareness activities. We are now the official
representative of BRAME in the US. We have joined over 20 other countries,joining BRAME (Blue Ribbon for Awareness of M.E.) around the world, and are in contact with many other persons,
researchers and medical as well as non-medical persons world-wide.
We have successfully approached several medical magazines such as Advance/Laboratory and MT Today to do stories about CFIDS, specifically about CFIDS in the medical professions. We feel that it is extremely important that others who work in medical fields are aware of the inordinate number of MPWC's and the significant number of CFIDS "clusters" in medical settings such as hospitals, medical laboratories, and physician's offices.
If you are a medical professional interested in joining MPWC, write to the webmaster for further information.
We have a lot of good and GREAT plans, ideas and projects in the
future.....and are in the process of applying for non-profit status ....you
will want to be a part of these plans!!
Note: This website is in the process of being updated. All apologies for any inconvenience this causes.
The Journal of Chronic Fatigue Syndrome -- The Journal of CFS, published by Haworth Press, is a refereed interdisciplinary journal for research, theory, and clinical practice related to the disease --
Click here for information on how to order a sample copy.