M/PWC
Medical Professionals/Persons
with CFIDS/M.E.
Frankie Billingslea MD, Anita Burgess RN, Kathy Houghton LVN
Official U.S. Representative of
BRAME!
Blue Ribbons for Awareness of M.E. [CFS]
Go to:
About MPWC How to join MPWC MPWC Essays and Information MPWC Newsletter October 1998 MPWC Newsletter January 1998 Links to other CFIDS information MPWC Registry Questionnaire MPWC CFIDS Research Review Webrings
Of Interest!!
MPWC's Fall 1998 Newsletter Click here to read the latest information on the October 1998 research conference of the American Association for Chronic Fatigue Syndrome (AACFS); the investigation into CDC's misuse of funds allocated for CFS; research briefs, announcements and general news. You can subscribe to MPWC's newsletters by sending an email to Lori Clovis.
Dr. Philip Lee, former Asst. Secretary of Health for the U.S. Dept. of HHS, is presented with the Rudy Perpich Award at the October 1997 research conference of the American Association for Chronic Fatigue Syndrome (AACFS). Click here for abstracts of research papers from the conference, and click here to read Dr. Lee's acceptance speech calling for the AACFS to change the name.
MPWC co-founder Meghan Shannon goes to Parliament!! The British organization BRAME (Blue Ribons for Awareness of Myalgic Encephalomyelitis) organized meetings with members of Parliament on May 14, and Meghan was invited to come. Click here to read the full story.
Gail Dahlen, RN, MPWC President, speaks at the CFSCC. Gail presented testimony on behalf of MPWC and PWC's everywhere at the April, 1998, meetings of the Chronic Fatigue Syndrome Coordainting Committee of the U.S. federal Department of Health and Human Services, with Surgeon-General David Satcher in attendance. Go here to read Gail's testimony.
About Medical Professionals/Persons With CFIDS
MPWC was formed in 1993 by Gail Dahlen and Meghan Shannon to give MPWC's an opportunity to coordinate their efforts, support each other, and make a difference for all PWC's.MPWC keeps an updated and completely confidential registry of medical persons with CFIDS. This group includes nurses, MD's, medical technologists, physical therapists, respiratory therapists, pharmacists, psychologists, medical office personnel, and any other person who was in any way associated with a medical profession. Just as with other PWC's, some MPWC's are still able to work, some are able to work only part-time, and some are totally disabled. We are the only group who has kept ongoing information on medical persons with CFIDS. MPWC has also conducted surveys on the name since 1993.
MPWC participates in a variety of advocacy and awareness activities. We are now the official representative of BRAME in the US. We have joined over 20 other countries,joining BRAME (Blue Ribbon for Awareness of M.E.) around the world, and are in contact with many other persons, researchers and medical as well as non-medical persons world-wide.
We have successfully approached several medical magazines such as Advance/Laboratory and MT Today to do stories about CFIDS, specifically about CFIDS in the medical professions. We feel that it is extremely important that others who work in medical fields are aware of the inordinate number of MPWC's and the significant number of CFIDS "clusters" in medical settings such as hospitals, medical laboratories, and physician's offices.